Maybe I've forgotten...

It seems I've forgotten in the past few weeks that HJ is a child with special needs. How can that be, you may be wondering, since it seems that everything I write about on this blog is related to the unique and "quirky" things that HJ does and says... I guess it's not that I've really forgotten, but maybe I've just started hoping that those special needs have lessened or even gone away in some ways. Which now that I think about it, is really as ridiculous as it sounds.

On one level, I know that I'm constantly thinking about HJ going to the full-day special ed kindergarten in the fall, and I know that we just came out of an IEP meeting where we discussed her apraxia and her low muscle tone, and her social-emotional issues, but for some reason, I think I buried that all underneath the idea that she has made a lot of progress.

But really, it's only taken a couple weeks of setbacks for me to realize that things are not always as rosy as I'd like to believe.

We had quite a few meltdowns in the past week.It all culminated with a small group meeting at our house where HJ had several meltdowns related to other children playing with her toys, the house not being "in order" anymore, too much stimulation, and general anxiety and inability to regulate her emotions.

It made me realize that in a sense, she's not just going through a stage where she has to learn how to share, but it's a serious anxiety and fear that she has about situations that are unfamiliar and things that are out of her control. In a word, it's debilitating.

But in a strange way, this also makes me less discouraged. It kind of resets my expectations for her, and softens my heart to what she is going through internally. It makes me have compassion instead of only frustration and anger. And it makes me rethink once again, our daily schedule, and the activities and commitments in our lives.

If she was physically disabled, I wouldn't so conveniently forget and wonder why she can't run or jump or do things that other "normal" kids can. But, I would still want her to be able to experience and enjoy everything as much as possible, just with the right assistance.

With this whole anxiety and sensory processing disorder, though, it's just not as clear-cut for me. How do I make accommodations for her, without making excuses? How do I know what is due to environment and over stimulation, and what is due to bad behavior? Most of the time, it's just really confusing. Sometimes I start to wonder, maybe she needs even more help that we're giving her. Does she really need meds, or more frequent therapy, or more testing to see what other diagnosis we might be missing?

On the other hand, although I know that we cannot have our lives revolve around HJ's issues, I realize that life is just better for all of us when we make even the simplest accommodations for her. For example, after the meltdown debacles we had through the week, we had a relatively quiet and stress-free weekend. And not surprisingly, HJ did great at Sunday school, slept well, ate well, and was ready to go to school on Monday.

A happy moment from the past month (visiting Daddy at work)

It's time for me to remember this, and accept it, and not just wish that HJ didn't have these issues. It's time for me to admit to God again, that I really, really cannot do this parenting thing without His help and strength every single day. So please help me, God, be a better mother to HJ and love her unconditionally as You love us all the time.